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08.40 (GMT) Registration, Coffee & Informal Networking

08.50 (GMT) GIC Welcome, Interactive Voting Introduction & Morning Co-Chairs’ Opening Remarks

09.00 (GMT) Morning Co-Chair’s Opening Remarks

Anand Das
Regional Client Partner
Pfizer UK

Dirk Abeel
Global Medical Sales Director
Reckitt Benckiser

Early Patient Involvement In Clinical Trials

09.10 Strategies To Engage Patients Early On In Clinical Trial Design & Drug Development To Ensure Faster, More Effective Market Access & Better Patient Outcomes

  • Practical steps to improve patient recruitment and increase adherence and retention to ensure accurate testing, produce optimal products and enable drugs to get from lab to shelf as quickly as possible
  • Meaningful methods to involve patients from the start and post-trial to gain real-world evidence and incorporate impactful, value-adding patient feedback into drug development
  • How can patients be encouraged to participate in the creation of new medical devices, apps and digital health to enrich business and patient outcomes?
  • Closing the loop – how can pharma brands build a community and better relay the outcomes of a clinical trial to the patient volunteers?

Oleksandr Gorbenko
Global Patient Centricity Director

The Patient Journey - Q&A Panel

09.30 High-Impact Strategies To Improve The End-To-End Patient Journey: How Can Pharma Improve Patient Experience?

  • Beyond the pill! Examining opportunities in the patient journey to determine where pharma can most tangibly improve patient experiences and commercial success
  • Combatting misinformation by uncovering where patients seek information and equipping patients with accessible, easily digestible information from day one to empower them to make their own decisions
  • How can you accurately measure and determine the value that your strategies are adding to the patient – and the business?

Lu Zheng
Senior Director Head of Global Strategic Patient Services

Lara Pippo
Head of Market Access & Government Affairs
CSL Behring

Ilaria Piubelli
Global Patient Service Lead, Rare Metabolic Diseases

Patient Insight

10.00 It’s Time To Think Practically! Actionable Insights Into Using Patient Data & Feedback To Improve Patient Welfare & Strategic Success

  • You want to support patients, but there’s so many rules and regulations! How can pharma gain real insights into patient needs and understand their journey with limited data access?
  • How can the industry better understand the patient voice to deliver what patients want and need to improve patient outcomes?
  • What tools are out there to tackle patient data, information and feedback and translate them into real life, applicable insights and action plans?
  • Benchmarking patient engagement levels throughout to determine to what extent your activities are making a difference

Philibert Goulet
Head of Vaccines Patient Office

10.20 Morning Refreshment Break With Informal Networking

Virtual Tools for Better Patient Engagement

10.50 Virtual Tools for Better Patient Engagement

  • Life science companies increasingly see themselves as part of an ecosystem – along with advocacy organizations, physicians, regulators, and other stakeholders – with patients at the center. Embracing a patient-centric approach means engaging with patients and caregivers on a meaningful, regular basis. How can pharmaceutical and medical device companies establish productive relationships with patients and those who care for them? Join us to learn from real-world examples of how technology is removing barriers to patient engagement and yielding more actionable insights.

Nina Levin
Vice President, Client Success

Patient Feedback - Panel 

11.05 The Patient Platform: Sharing Insights & Feedback Around Patient Motivations, Wellbeing, Preferences & Experiences

  • What has motivated you to be here today and want to directly engage with the industry?
  • What have been the highs and lows of your experiences and relationships with pharma?
  • Patient reported outcomes are great, but what do you as patients consider value adding?
  • How can pharma continue to encourage patients to actively participate in the end-to-end clinical trials process?
  • Where do you think opportunities lie for pharma to positively impact your treatment and wider wellbeing?

Lorna Allen
PPI Coordinator for the Clinical Trials Accelerator Platform
Cystic Fibrosis Trust

Dany Bell
Strategic Advisor Treatment, Medicines & Genomics
Macmillan Cancer Support

Garry Brough
Lead for Peer Learning, Partnerships & Policy
Positively UK

Olive Fulton
Patient Advocate
Asthma UK Centre for Applied Research

Margaret Kelman, Specialist Allergy Nurse, Allergy UK

Case Study

11.35 Achieving Patient Centricity In The Next Generation Of Clinical Trials

The landscape of clinical trials is rapidly changing, with the adoption of novel technologies and innovation in trial design amidst the fall out of COVID-19.

How do you maintain patient-friendly clinical trials in such an environment?

This presentation will highlight some of the challenges and successes experienced in navigating this landscape, how the NIHR has worked in collaboration with patients, Industry and other key stakeholders to provide the required solutions.

Gareth Powell
Business Development Officer & Patient Engagement Project Lead
National Institute of Health Research (NIHR)

Patient Advocacy Partnerships

11.50 Forming Strong, Meaningful & Long-Lasting Strategic Patient-Pharma Partnerships Which Add Value To Patients & Pharma Alike

  • Just how do you go about forming a partnership? From identifying the right partners to co-creating strategic relationships with longevity, how has the relationship evolved?
  • Manage expectations to work together towards a common goal and raise greater awareness of the disease, improve quality of life and treatment options and provide support from day one
  • The success stories! How to maintain a successful partnership beyond the honeymoon period and secure an ongoing collaboration with measurable impact?
  • Evidence the value created for patients, the healthcare system and pharmaceuticals

Geoff Rollason
Patient Experiences & Service Director
Pfizer UK

Catherine Wood
Head of Services Improvement
Breast Cancer Now

Internal & Patient Collaboration - Case Study

12.20 In-Depth Haematology Case Study

Internal Collaboration Between Medical & Patient Engagement Functions For In-Depth, Value-Adding Patient Insights & Outcomes

Michael Zaiac
ORE Medical Affairs Head

Veronica Foote
Global Head of Patient Engagement Oncology Solid Tumours

12.40 Lunch For Delegates, Speakers & Partners

Informal Peer-To-Peer Discussions

13.20 Informal Peer-To-Peer Discussions

A) Coronavirus Reponse

B) Chronic Illness

C) Mental Health

13.50 Afternoon Chair’s Opening Remarks

Paul Edwards
Director of Clinical Services
Dementia UK

Hands-On AI For Patient Centricity

14.00 Hands-On AI For Patient Centricity: How Online Patient Experience Data Can Be Used In RWE Generation

  • Case study exploration of authentic breast cancer patient voices from patient-generated online data.
  • Understanding changing needs of breast cancer patients during the COVID-19 pandemic.
  • Showcase of principled research process utilizing Artificial Intelligence and Natural Language Processing to form patient-centric action insights.

Janik Jaskolski
Co-founder and CEO

Teodor Lange
Semalytix Fellow US
Semalytix GmbH

Collaborating With Stakeholders - Q&A Panel

14.20 Tangible Techniques To Overcome Blockers, Achieve Strong Collaborative Relationships & Align Multiple Stakeholders Behind The Patient

  • From industry to patient advocacy groups to regulators to healthcare and government; we’ve all got our own agendas, but how can we best collaborate and refocus on the patient?
  • How can we better understand different objectives and priorities and communicate effectively to manage expectations and align to one another?
  • Learning from one another! Sharing best practice, innovations and patient strategies which have delivered real impact

Chris Macdonald
Head of Research
Pancreatic Cancer UK

Mary Uhlenhopp
RN, MS, MPH Head (Sr Dir), Global Advocacy

Andras Fehervary
Senior Advisor – Healthcare



Digital & Tech 

14.50 What We Can Learn From Disney To Help Patients Become The Heroes Of Their Healthcare Journeys?

  • What is the hero's journey and how might it apply to healthcare?
  • How does the hero's journey challenge us to think differently?
  • What role can digital solutions play in transforming patient outcomes and experiences?

Neil Osmond

15.05 Afternoon Refreshment Break With Informal Networking

Emerging from Covid-19- the growing need for patient support

15:35 Emerging from Covid-19- the growing need for patient support 

  • Covid-19 has left vulnerable patients isolated with an increasing need for meaningful support. Healthcare services have attempted to adapt to the growing need however, there is a clear gap between the support patient require. With ongoing challenges, what have we learnt in 2020 and how can we apply these learning moving forward.

Sumira Riaz
Health Psychologist
OPEN Health


Overcoming Barriers To Patient Centricity - Q&A Panel

15.50 Overcome Internal & Industry Barriers To Ensure Genuine Patient Centricity, Embed The Patient At The Heart Of The Business & Commit To More

  • Break down those barriers! Challenge internal apathy and demonstrate the value and commercial benefits of consistent patient involvement to secure senior buy-in and thoroughly embed patient centricity in your organisation
  • Navigate patient expectations, regulation, internal policies and communications barriers to successfully execute patient strategies
  • Go beyond paying lip service: how can you ascertain that your internal patient support is actually translating to better patient outcomes?

Michaela Dinböck
Global Head Patient Engagement Center of Excellence

Dirk Abeel
Global Medical Sales Director
Reckitt Benckiser

Sharon Taylor
Senior Digital Client Partner, UK

Veronica Foote
Global Head of Patient Engagement Oncology Solid Tumours

Case Study 

16.20 The Authentic Patient Experience: the first longitudinal study to understand how living with Postural Tachycardia Syndrome (PoTS) affects everyday life

  • Why would anyone not want to hear from patients? It is time to stop ‘talking the talk’
  • An overview of PoTS LIVE
  • Footage taken directly from the PoTS LIVE report
  • How immersive research methodologies can help healthcare companies to finally ‘walk the walk’

Su Smith
Origins Insights

Safeguarding Patients

16.35 Consider Patient Needs Beyond Treatment & Health: Actionable Measures To Positively Impact Patient Safety, Data & Wellbeing

  • How can you ensure that patient safety is at the forefront of every internal process?
  • Navigating the world of data! How can you compliantly and ethically collect and manage patient data to ensure their privacy and integrity?
  • Beyond the pill, beyond the disease, beyond the treatment: ensure you are seeing the full patient picture and considering wellbeing factors from mental health, to pain management, to quality of life

Kristin Janett Løseth
Director; Medical Information, Patient Safety & Ethics

16.55 Co-Chairs’ Closing Remarks

17.05 Official Close Of Conference