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Practical, Proven & Proactive New Strategies To Empower The Patient Voice & Boost Patient Outcomes With
08.30
REGISTRATION OPENS
Registration, Speed Networking & GIC Welcome
09.00
OPENING REMARKS
Morning Chair’s Opening Remarks
Jost Leehuis MD, Safety Science Partner, Roche
09.10
PANEL Q&A
Successfully Embed Patient-First Strategies & Foster Transparent Relationships That Integrate Patients Into All Healthcare Processes & Fuel Purposeful Change Across Multiple Healthcare Systems
● What strategies and approaches have made a real and tangible impact in patient engagement? Assess current methods, emerging strategies, and critical feedback on patient experiences to ultimately provide better patient journeys, treatment, and care
● Amplify the importance of early communication and collaboration with patients for more efficient drug development cycles that reduce impact on patients and improve market access
● Develop high-impact communication strategies to cultivate interactions with patients that help to decipher the hard-to-navigate healthcare regulations for medicines and devices that guarantee commercial success
● Reduce drug development red tape, identify gaps, and produce treatments that authentically support patient needs throughout the entire patient journey by ensuring patient centricity is at the forefront of development processes
Katja Cramer, Sci. Head Patient Engagement & Advocacy Germany, Janssen – Pharmaceutical Companies of Johnson & Johnson
Jasenka Tiefenbach, Value-Based Partnership & Innovative Patient Solution Lead, Takeda Eastern Europe
Helene Riveiro, Global Medical Associate Director Dermatology – Global Medical Affairs, Sanofi
Petrina Stevens RN, Global Senior Director, Patient Engagement (CVRM), AstraZeneca
Catherine O’Connor, Global Director Patient Solutions, AstraZeneca
09.40
MEASURE WITH PURPOSE
Maximise The Value Of Patient Engagement & Deliver Actionable Strategies With Measurement Tools Which Translate Patient Experience Data Insights Into Tangible Results
● Evaluate the impact of involving patients and the public early and consistently; what matters most and effectively optimizes recruitment and retention strategies
● Effectively track and measure the impact of patient engagement initiatives – learnings from the Journey to Better Health case study
● Identify new tactics and strategies to elevate the patient voice among all stakeholders and infuse learnings throughout the drug development process
Annick de Bruin, Chief Research & Insights Officer, CISCRP
10.00
DOUBLE PERSPECTIVE
Drive Change By Advocating For The Value Of Patient Voice In Key Processes & Decision Making To Encourage Global & Patient-Led Industry Transformation
● Embed patient-centred decision-making in drug development by focusing the paramount importance of patient voices in broader industry contexts
● Elevate patients to strategic partners by highlighting their essential role in addressing barriers to patient centricity and improving patient outcomes
● How can pharma and healthcare professionals engrain patient-centricity into advocacy models and ensure equity in patient market access globally and locally?
10.00 Perspective 1
Shannon Altimari, Senior Director – Patient Engagement & Global Oncology Lead, GSK
10.20 Perspective 2
Carole Scrafton, CEO & Co-Founder, Flutters & Strutters
10.40
We know a gender health gap exists in the UK. Discussions surrounding the topic have flourished, but why hasn’t this dialogue translated into action? We will use cancer care as an example of the shocking gender disparity in incidence, survival rates, funding and access to innovative treatments to identify tangible steps for change.
Helen Bennis, Senior Director, Ipsos
10.55
MORNING REFRESHMENT BREAK WITH INFORMAL NETWORKING
11.25
Closing The Gaps In Patient-Centricity: Transforming Medical Education For HCPs
● Where are we today with integrating the patient voice into healthcare and HCP-patient/caregiver communication? Why is change needed?
● Why the time is now to integrate patient-centricity into medical education for HCPs
● How medical education for HCPs can evolve, including patient integration, to provide a holistic approach that has impact and supports advancing patient outcomes.
Victoria Harvey-Jones PhD, Associate Director, Clinical Strategy, Medscape Oncology Global
11.40
Accelerate The Effectiveness Of Health Technology Assessment Processes By Advocating For Increased Patient Involvement To Comprehensively Assess & Address Limits To Global Market Access
● Debate the need for patient inclusion in the HTA framework – why is patient voice critical at this stage and what are the potential outcomes?
● Securely enable patients and patient advocacy groups to better understand and participate in the health technology assessment framework to accelerate patient education around future drug development
● How can you leverage patient experience data to improve HTA processes for greater impact?
Mignon Van der Westerlakan, Head Public Affairs & Communication NL, Sanofi
12.00
CASE STUDY
Navigating Business Demands Whilst Upholding A Dedication To Patient Engagement
Natacha Raphael, Former International Head- Corporate Affairs & Patient Advocacy, Biogen
12.20
PANEL Q&A
Successfully Connect All Key Stakeholders & Secure Value-Driven Collaborations By Aligning Visions & Values To Strengthen Patient Outcomes & Maximise Commercial ROI
● Support a global network of cross-functional patient engagement stakeholders to optimise access programs and services, innovations, and educational materials to support patients at every level
● How can you effectively engage senior leadership to guarantee long-term support for your patient engagement goals and prioritise the best care and experience for patients whilst remaining commercially successful?
● Discuss complex conflicts of interest among patients, advocacy groups, healthcare providers, and compliance agencies to better align and incorporate preferences into emerging drug development and commercialisation strategies
● Collaboration is key! Build meaningful relationships within the industry and include advocacy groups, healthcare experts, researchers, carers, and patients in your network to gain practical strategies to combat barriers to patient centricity
Konstantinos Tsekmes, Associate Director Clinical Operations, MSD
Nicolas Pivert, Senior Business Director Cardiac Pacing Therapies – Western Europe, Medtronic
Marija Koumoutsaris, Director Medical Safety Team Lead Global Patient Safety, Sandoz
Arun Micheelson, Senior Specialist – Patient Insights, Lundbeck
Nikul Baksho, Research Involvement Lead, Parkinsons UK
12.50
Develop & Progress Purposeful Partnerships With Patients To Optimise Clinical Trial Design Encourage Global Patient Access & Secure Patient-Approved Therapies
● Discuss the benefits of patient involvement in the design and preparation phase of clinical trials and showcase the value of engaging and communicating with patients at the very start
● What happens when patients don’t fit the perfect patient mould? Prioritise patient diversity strategies for clinical trials that reach unrepresented groups for equitable and inclusive patient outcomes
● Which opportunities increase patient participation for collaborative interactions during the clinical trial design to boost patient access in real life
● Debate global approaches to clinical trial design, pinpoint gaps for improvement, and ensure patient’s input to improve efficacy safety and quality of drug development is at the centre of your business plan
Laura Risueño Ayerbe, R&D Patient Officer, Servier
13.10
BONUS SESSION; RESERVED FOR EXCLUSIVE CONFERENCE PARTNER
13.30
LUNCH & INFORMAL NETWORKING FOR SPEAKERS, DELEGATES & PARTNERS
14.00
INFORMAL BREAKOUT DISCUSSIONS
a) Rare Diseases & Uplifting The Rare Community
Lex van der Heijden, PMP, Prince 2, President, CMTC-OVM
b) Patient Education & Research
Wendy Borsari, Associate Director- Patient Advocacy, Tenaya Therapeutics
c) Patient & Pharma Co-Creation
14.30
Afternoon Chair’s Opening Remarks
Natacha Raphael, Former International Head – Corporate Affairs & Patient Advocacy, Biogen
14.40
AI, DIGITAL, TECH & TOOLS
Effectively Engage Patients Across Both Physical & Digital Spaces By Leveraging AI & Automation Platforms & Tools To Deliver High-Impact Holistic Care
● Determine the most effective platforms to reach and engage with patients and improve patient outcomes
● How are patients responding to digital change? Create robust strategies that measure the value of digital engagement to guarantee seamless user adoption in patient journeys
● Co-create digital processes with patients and advocates to gauge the best practices to resonate with different patient audiences
● How will regulatory updates affect digital access for patients and what measures can be taken to mitigate upcoming risks to optimal engagement?
Arun Micheelson, Senior Specialist – Patient Insights, Lundbeck
15.00
PANEL Q&A
Centre The Most Essential Stakeholder: The Patient! Empower & Engage Patients With Transparent Insights Into Personal Patient Experiences & Testimonies To Strengthen Relationships & Align Values & Goals
● What are the topmost patient concerns of 2025 and beyond? Share insights into the pressures of everyday patients to amplify patient voice and tailor partnerships with patient advocacy groups to patient needs
● Uncover new best practices in pharma-patient communications by hearing what has worked and what has not through real patient feedback to better align visions and values, achieving mutually desirable results
● How can you support patients and sustain long-lasting relationships which promote patient involvement in collaborations?
Steve Clark, Patient Advocate Campaigns Ambassador, Patient Advocate
Alan Thomas, Founder & Chairman, Ataxia & Me
Lex van der Heijden, PMP, Prince2, President, CMTC-OVM
15.30
CASE STUDY
Personalising Platforms With Patient Experience: Pfizer’s This Is Living With Cancer (TLWC)
Ana Arboleda, Global Director Patient Experience- Oncology, Pfizer
15.50
BONUS SESSION; RESERVED FOR EXCLUSIVE CONFERENCE PARTNER
16.20
AFTERNOON REFRESHMENT BREAK WITH INFORMAL NETWORKING
16.50
Proactively Collaborate With Patients To Ensure Sustained Support Throughout Patient Journeys By Re-Evaluating Processes & Initiatives With Patients At The Centre Of Decision Making
● Demonstrate the impact of patient voice by incorporating the needs of the patient and caregiver community into your organisation’s goals and values
● How can you leverage insightful PAG data to co-create tailored patient journeys with specific disease advocacy groups for health outcomes?
● Strategically empower the healthcare community towards patient-driven strategies to ensure best care practices
● How can you initiate changes in relationships and structures to establish patient engagement as a business-wide priority?
16.50 Perspective 1
Jacek Lange MD PhD, Associate Director – Medical Affairs (Renal Care, Central & Southeast Europe & CIS), Baxter International Inc
17.10 Perspective 2
Wendy Borsari, Associate Director- Patient Advocacy, Tenaya
17.30
PANEL Q&A – Critical Strategies
Break Through Barriers To Patient Centricity & Engagement To Empower Patients, Achieve Industry-Wide Goals & Tackle Increased Regulatory Uncertainty
● Drive purposeful patient engagement by strategising short-term and long-term solutions to overcoming critical barriers to support underserved patient communities
● Be prepared and get ahead! Gauge impact of emerging regulations and initiatives and determine what makes the difference to drive greater patient involvement within regulation compliance
● How can pharmaceutical companies empower patient advocacy groups and ensure sustainable PAG involvement in 2025 and beyond?
Jacek Lange MD PhD, Associate Director – Medical Affairs (Renal Care, Central & Southeast Europe & CIS), Baxter International Inc
Dr Lorna Pender, Global Patient Engagement Lead, Clinigen
Jolanda Koenders, Head of New Product Planning Central Southeast Europe, Takeda
18.00
CLOSING REMARKS
Afternoon Chair’s Closing Remarks & Official Close Of Conference
Natacha Raphael, Former International Head – Corporate Affairs & Patient Advocacy, Biogen
Please check the Patient Centricity & Engagement Conference website regularly for programme updates and confirmed speakers. For more information or to get involved, please call 44 (0)20 3479 2299 or email info@patientengagementconference.com